[et_pb_section fb_built=”1″ admin_label=”News T-Hero Section” module_class=”hero tert” _builder_version=”4.18.0″ _module_preset=”default” background_image=”https:\/\/aafa.org\/wp-content\/uploads\/2022\/07\/AAFA-Website_Tertiary_News.jpg” background_position=”top_right” custom_padding=”1%||1%||true|false” global_module=”2297″ saved_tabs=”all” collapsed=”on” global_colors_info=”{}”][et_pb_row _builder_version=”4.17.4″ _module_preset=”default” background_enable_image=”off” background_size=”initial” background_position=”bottom_left” background_horizontal_offset=”0%” custom_margin=”||||false|false” custom_padding=”2%||0px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text admin_label=”Nav Parent Title” module_class=”tert-parent” _builder_version=”4.20.4″ _module_preset=”default” header_2_font=”|600|||||||” header_2_text_align=”left” header_2_text_color=”#FFFFFF” header_2_font_size=”32px” custom_margin=”||0px||false|false” global_colors_info=”{}”]<\/p>\n
[\/et_pb_text][et_pb_code admin_label=”Breadcrumbs” module_class=”bcrumb” _builder_version=”4.17.4″ _module_preset=”default” text_orientation=”left” custom_margin=”||||false|false” custom_padding=”||||false|false” custom_css_main_element=”font-size:16px;||color: #fff;” global_colors_info=”{}”][\/et_pb_code][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ admin_label=”Main Content” _builder_version=”4.17.4″ _module_preset=”default” background_enable_image=”off” background_size=”initial” background_position=”bottom_right” custom_padding=”2%||2%||true|false” collapsed=”off” global_colors_info=”{}”][et_pb_row admin_label=”Title Row” _builder_version=”4.18.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_post_title author=”off” comments=”off” featured_image=”off” admin_label=”Blog Post Title” _builder_version=”4.18.0″ _module_preset=”default” title_level=”h2″ title_font=”|600|||||||” title_text_color=”#008C99″ title_font_size=”39px” meta_font=”|700|||||||” meta_text_color=”#505050″ meta_font_size=”20px” title_font_size_tablet=”30px” title_font_size_phone=”26px” title_font_size_last_edited=”on|phone” meta_font_size_tablet=”20px” meta_font_size_phone=”16px” meta_font_size_last_edited=”on|phone” global_colors_info=”{}”][\/et_pb_post_title][\/et_pb_column][\/et_pb_row][et_pb_row admin_label=”Content Row” module_class=”blog-single” _builder_version=”4.18.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text admin_label=”Page Content” module_class=”secondary-intro” _builder_version=”4.21.0″ _module_preset=”default” text_text_color=”#505050″ text_line_height=”1.5em” header_2_font=”|600|||||||” header_2_text_color=”#008c99″ header_2_font_size=”39px” custom_margin=”||3%||false|false” global_colors_info=”{}”]<\/p>\n
Report published in honor of National Eosinophil Awareness Week May 2023<\/em><\/p>\n Washington D.C., May 18, 2023 \u2014 A groundbreaking study report reveals challenges and barriers to timely diagnosis and effective treatment and management of a rare, but increasing allergic condition known as eosinophilic esophagitis (EoE). The results of the study portray the current state of EoE care in the United States and identify unmet needs for patients, family members, and health care providers.<\/p>\n Eosinophilic esophagitis (EoE) is a chronic inflammatory condition of the esophagus (the tube that connects the mouth to the stomach). It is characterized by excessive numbers of eosinophils, a type of white blood cell, that accumulate in the esophagus in response to a trigger (often food or pollen). EoE can cause difficulty swallowing, food impactions (where food gets stuck in the throat), nausea, vomiting, reflux, stomach and chest pain, malnutrition and weight loss.<\/p>\n The Asthma and Allergy Foundation of America (AAFA) and the American Partnership for Eosinophilic Disorders (APFED) conducted a multicomponent cross-sectional needs assessment study for EoE. The study aimed to understand the patient journey for EoE as well as health care providers\u2019 awareness of and practice around EoE. The public summary of the study is now available in a report called Life with EoE: The Patient Experience and Opportunities to Improve Care in the U.S.<\/a><\/strong><\/u><\/p>\n \u201cEoE significantly impacts patients and their families physically, socially, mentally, and financially,\u201d said Sanaz Eftekhari, co-author and vice president of research for AAFA. \u201cPeople living with EoE may face many challenges throughout their disease journey. The process of diagnosis can be lengthy and frustrating. Clinical management of EoE often requires ongoing testing, clinic visits, and treatment evaluations and reevaluations. Understanding the EoE journey directly from patients and caregivers can help ensure that future diagnostic tools, clinical guidelines, treatments, and resources for EoE are aligned with patient needs.\u201d<\/p>\n Key findings:<\/p>\n \u201cEosinophilic esophagitis is a complex condition to manage, and this study and report help identify areas of improvement to ensure patients have the support they need to confidently manage their disease,\u201d states Matthew Greenhawt, M.D., MBA, MSc of Children\u2019s Hospital\u00a0Colorado and member of AAFA\u2019s Medical Scientific Council.<\/p>\n The Life with EoE<\/strong> report identifies opportunities to address the unmet needs and improve future care for people living with eosinophilic esophagitis in the United States. Insights from patients, caregivers, and health care providers describe the current state of EoE care in the United States\u2014including challenges and barriers to timely diagnosis, quality medical care, effective treatments, and access to resources for EoE.<\/p>\n \u201cThis study sheds light onto the barriers to efficient and quality care for those living with EoE in the U.S.,\u201d said Mary Jo Strobel, co-author and executive director for APFED. \u201cPatients are eager for new treatment options and streamlined care. We anticipate this report will guide efforts of advocates, educators, policymakers, and members of the medical and research communities as we all work toward improved care and development of meaningful resources for those with EoE.\u201d<\/p>\n The Life with EoE <\/strong>report is an independent research project of the Asthma and Allergy Foundation of America and the American Partnership for Eosinophilic Disorders and made possible by support from Sanofi and Regeneron.<\/p>\n <\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row admin_label=”Content Row” module_class=”blog-single” _builder_version=”4.18.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.17.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text admin_label=”Press Contact” _builder_version=”4.21.0″ _module_preset=”default” text_text_color=”#505050″ link_font=”||||on|||#008c99|” link_text_color=”#008c99″ header_2_font=”|600|||||||” header_2_text_color=”#008c99″ header_2_font_size=”39px” header_3_font=”|600|||||||” header_3_text_align=”left” header_3_text_color=”#008c99″ header_3_font_size=”28px” global_colors_info=”{}”]<\/p>\n Press Contact:<\/strong> [\/et_pb_text][et_pb_text admin_label=”About ” _builder_version=”4.21.0″ _module_preset=”default” text_text_color=”#505050″ link_font=”||||on|||#008c99|” link_text_color=”#008c99″ link_line_height=”1.7em” ul_line_height=”1.7em” header_2_font=”|600|||||||” header_2_text_color=”#008c99″ header_2_font_size=”39px” header_3_font=”|600|||||||” header_3_text_align=”left” header_3_text_color=”#008c99″ header_3_font_size=”28px” background_color=”#F5EDDF” custom_padding=”4%|4%|4%|4%|true|true” box_shadow_style=”preset2″ global_colors_info=”{}”]<\/p>\n About AAFA<\/strong><\/p>\n Founded in 1953, AAFA is the oldest and largest non-profit patient organization dedicated to saving lives and reducing the burden of disease for people with asthma, allergies and related conditions through research, education, advocacy and support. AAFA offers extensive support for individuals and families affected by asthma and allergic diseases, such as food allergies and atopic dermatitis (eczema). Through its online patient support communities, network of local chapters and affiliated support groups, AAFA empowers patients and their families by providing practical, evidence-based information and community programs and services. AAFA is the only asthma and allergy patient advocacy group that is certified to meet the standards of excellence set by the National Health Council. For more information, visit: aafa.org<\/a> and kidswithfoodallergies.org<\/a><\/p>\n <\/p>\n
\n\n
\n
Andy Spears
Asthma and Allergy Foundation of America (AAFA)
media@aafa.org<\/p>\n